P2P USA — Parent to Parent

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Parent to Parent USA 2016

Staff

Kathy BrillKathy Brill M.Ed., Executive Director of Parent to Parent USA, is mom to three daughters. Her youngest, Alexa, age 23, was born three months premature and uses numerous personal and assistive technology supports to assist her in being successfully and fully included in all aspects of her home, school, and community. Kathy had been director of Parent to Parent of PA for seven years, hosting the International Parent to Parent Conference in 2002. She currently serves on the National Advisory Board on Improving Health Care Services for Seniors and People with Disabilities. She previously served as Chair of PA’s State Interagency Coordinating Council for three years, President of PA TASH, and Secretary of NConSD (National Coalition on Self-Determination.) She was also a trainer for Natural Allies in Pennsylvania, an effort to build collaborative partnerships between higher education in early childhood and parents who are raising children with disabilities and special health care needs. Kathy received the National Council on Disability 2006 Leadership Award in appreciation of outstanding contributions to the improvement of disability policy in the US.

Board Members

  • President: Moe Schroeder
  • Vice President: Janna Murrell
  • Secretary: Robin Dodds
  • Treasurer: Candi Bush
  • Past President: Dana Yarbrough
  • - Andrea Leon
  • - Mary Summers

History of Parent to Parent USA

2003-2012

Parent to Parent of the United States (Parent to Parent USA) was created in 2003 with funding from the Robert Wood Johnson Foundation to ensure that families nation-wide whose children have special needs have access to Parent to Parent support. Founders and affiliations: Nancy DiVenere, Parent to Parent of Vermont; Mary Slaughter, Raising Special Kids, AZ; Kathy Brill, Parent to Parent of PA; Connie Ginsberg, Family Connection of South Carolina.

  P2P USA Founders
Parent to Parent support – the matching of experienced, trained Support Parents with families seeking support has been proven effective in helping families cope with their day to day lives, connect with community resources and navigate the health care system. Parent to Parent USA has identified and connected all statewide Parent to Parent programs nationally, a first step toward forming an Alliance amongst all family support programs in the country that demonstrate the following:

  • Parent to Parent support as a core organizational component
  • Commitment to implement Parent to Parent USA - endorsed practices

Parent to Parent USA was incorporated as a 501(c)(3) in 2006. Since this date the P2PUSA Board of Directors has met bi-monthly to review, advise and implement mission driven, membership advised policies and practices In October 2006 with funding from key partners including Maternal and Child Health, the Beach Center on Disability and Family Voices Parent to Parent USA hosted a meeting attended by 27 Statewide Parent to Parent program directors. In June, 2009 Texas Parent to Parent hosted the Parent to Parent USA Director’s Meeting attended by thirty-eight program staff representing 21 emerging and established statewide Parent to Parent programs. Colorado Parent to Parent hosted the P2PUSA 2011 Director's Meeting in September, 2011.

Founder/Past President

Nancy DiVenere BA, St Michael's College, was, until 2004, the Executive Director of Parent to Parent of Vermont, a statewide family support and leadership organization she founded in 1987. As Director, Nancy introduced Family Faculty into the University of Vermont, College of Medicine preparing and supporting a cadre of experienced families to teach patient- and family-centered care to medical students and pediatric residences. Vermont’s Medical Education Program was recognized by the Association of American Medical Colleges as the first Family Faculty program in the country. In 1998, Nancy was honored by the Robert Wood Johnson Foundation with a Community Health Leadership Award as one of ten individuals in the country "changing the shape of health care in America." In 2003 with funding from the Robert Wood Johnson Foundation Nancy and colleagues created Parent to Parent USA serving as President until 2011. Nancy is a member of the Board of Directors and is Faculty for the Institute for Patient-and Family-Centered Care in Bethesda, Maryland.
Nancy was inspired by the birth of her son Brett whose early years were compromised due to a birth injury

Tribute to Polly Arango

The History of the Parent to Parent Movement

1971-2002

The first Parent to Parent program in the U.S. was founded by Fran Porter, a parent, who collaborated with Shirley Dean, a social worker in 1971 and petitioned the Greater Omaha Arc in Omaha, Nebraska to establish Pilot Parents of Nebraska, a program in which parents of children with disabilities could share information and emotional support with other parents through a one-to-one match.

In 1974 Patty McGill Smith joined Pilot Parents and with her leadership received a regional developmental disability grant to help establish Parent to Parent programs in Nebraska, Iowa, Kansas, and Missouri. Within two years there were local programs in these four states and parents across the U.S. were calling Pilot Parents of Nebraska for information on setting up a Parent to Parent program in their own community.

For 36 years the Parent to Parent movement made steady progress, with the growth of many statewide, regional and disability specific peer support programs. In an effort to learn more about this movement and to study its impact, Ann and Rud Turnbull, Co-Directors of the Beach Center on Families and Disability hired Betsy Santelli in 1992 to conduct a national survey of Parent to Parent program administrators to learn about their
structures, services, funding, and answers to many other questions. This initial study led to the development of ongoing support for Parent to Parent efforts. Between 1992 and 2002 Betsy Santelli served as a vital link for Parent to Parent program directors across the country, offering guidance and materials based on survey findings and, connecting more experienced programs with emerging ones.

Since 1986, Parent to Parent programs attempted to have a conference every other year. The conference served as a place to discover new, best practices and re-energize around common missions. The conferences started in Nebraska in the early years and progressed to where a statewide program would sponsor the conference every other year, trying to hold the conference throughout the United States. Washington State served as host in 1986, Kansas in 1988, Florida in 1990, Arizona in 1992, North Carolina in 1994, New Mexico in 1996, Georgia in 1998, Nevada in 2000 and Pennsylvania in 2002. As these conferences grew the added dimension of Statewide Director’s Meetings were paired with the conferences. The need for Directors to meet annually was responded to by the Beach Center who generously assigned the coordinating of these meetings to Betsy.

Betsy SantelliBetsy Santelli was the touch-point of the Parent to Parent movement for many years. Her untimely death in 2002 came on the heal of two milestones in the Parent to Parent movement; the publication of The Parent to Parent Handbook by Brookes Publishing Company in 2001, and funding from the Robert Wood Johnson Foundation to strengthen and coordinate national efforts to ensure access to community based support for families with children who have special needs throughout the country.