Improving Access to Genetic Services:
A Regional Genetics Reference Guide to Needs Assessments and Community Partnerships
The Heartland Regional Genetics Network and the National Genetics Education and Family Support Center co-developed a reference guide to provide Regional Genetics Networks (RGNs) with tools, resources and real-world case studies for the purposes of conducting needs assessments and partnering with a wide range of patient communities.
RGNs can use this guide to help:
• Identify underserved populations and their specific barriers to genetic care.
• Develop culturally and linguistically appropriate practices that are respectful of diverse communities.
• Understand how to develop relationships with community partners and work together to conduct a needs assessment, as well as identify resources available to support these activities.
• Build on existing strengths within the network to expand upon strategies for working with diverse communities.
Click here to download the Regional Genetics Reference Guide to Needs Assessments and Community Partnerships.