Finding your Community after a Genetic Diagnosis

The Brown Family

Families may feel a range of emotions after the diagnosis of a genetic condition. One of the best ways to cope with a genetic diagnosis is to build yourself a strong support system. Parent to Parent USA Co Executive Director Lily Brown recently shared her experience and the power of making connections. Click here to read Lily’s full article on … Read More

The Science of Happiness Through the Art of Gratitude

We are excited to introduce Suzanne Wingard and her daughter Zoe, who created a video together to share their take on the science of happiness through the art of gratitude. Gratitude has been proven to be a powerful tools for cultivating happiness and improving our overall well-being. Check out the video below to learn more about the science behind this … Read More

Valerie’s Story

Valerie C and family

Valerie Colavecchio is the mom of a 17 year old boy named Parker who was born with a rare genetic disorder called galactosemia. She is also the statewide Program Manager for Family Support Services at Parent to Parent of NYS, where she takes pride in ensuring that every parent is heard, and understands they are not alone. Valerie recently shared … Read More

Lenn’s Story

Lenn Boston and his family

We are honored to introduce board member Lenn Boston of Kalamazoo, MI, a retired U.S. Navy Chief Petty Officer, real estate agent, and father of four, including a daughter with Angelman Syndrome. “We all have something that we’ve experienced in life that could possibly help someone else.” Lenn Boston Hear his uplifting and inspiring story about a blended family whose … Read More

Fiona’s Story

Fiona Patrick

Fiona Patrick, Parent to Parent of Pennsylvania Director and P2P USA Board Member, recently shared her personal journey. What role has emotional support played in her healing process? And how did she grow a Parent to Parent program which has provided support to thousands of families in the past 25 years? Whether you are new to caring for a child … Read More

COVID-19 and Life Crises: Eviction During a Pandemic

The COVID emergency presents very real challenges for us all, but our loved ones with disabilities are at higher risk. Janice Fitzgerald, former President of the Parent to Parent USA Board of Directors, shares her family’s recent experience when her son, John, received a very unexpected eviction notice.