Recent collaborationsOur Work

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Telehealth in MCH Public Health Systems

Parent to Parent USA is providing subject matter expertise to the Association of Maternal & Child Health Programs (AMCHP) to support maternal and child health programs in building, improving, expanding, and sustaining the use of telehealth as part of the CARES Act pandemic response.
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National Genetics Education and Family Support Center

Parent to Parent USA supports the National Genetics Education and Family Support Center in building a network of partners and develop accessible tools to improve access to and the quality of genetic services.
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Navigate Newborn Screening

Parent to Parent USA is collaborating with Expecting Health on the launch of a free educational module for families called Navigate Newborn Screening. In this short module, families will learn about the newborn screening process, questions to ask their healthcare provider, and more.
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Supported Decision-Making

Parent to Parent USA has been a partner with the National Resource Center on Supported Decision-Making (NRC-SDM) to promote Supported Decision-Making and Alternatives to Guardianship. With other parent organizations, we brought a parent voice to the project. We have compiled a listing of resources that may be of assistance to families and individuals with disabilities.
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Primary Care Collaborative

Parent to Parent USA has worked with the Primary Care Collaborative (PCC) to help address and improve patient and family engagement in clinical practices and to engage more practices in referring to parent to parent programs.
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PTC Therapeutics

Parent to Parent USA and PTC Therapeutics share a commitment to helping the lives of patients and families within our communities. PTC Therapeutics is a science-led, patient-centered biopharmaceutical company focused on discovering, developing, and commercializing medicine for patients with rare disease. To connect with a patient advocate from PTC, please contact: GTpatientengagement@ptcbio.com.
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