Families may feel a range of emotions after the diagnosis of a genetic condition. One of the best ways to cope with a genetic diagnosis is to build yourself a strong support system. Parent to Parent USA Co Executive Director Lily Brown recently shared her experience and the power of making connections. Click here to read Lily’s full article on … Read More
Valerie’s Story
Valerie Colavecchio is the mom of a 17 year old boy named Parker who was born with a rare genetic disorder called galactosemia. She is also the statewide Program Manager for Family Support Services at Parent to Parent of NYS, where she takes pride in ensuring that every parent is heard, and understands they are not alone. Valerie recently shared … Read More