Study Opportunity for Families of Young Children with Rare Conditions or Developmental Delays

Parent to Parent USA is sharing a research opportunity from RTI International and The University of North Carolina at Chapel Hill. The Parent and Infant Inter(X)action Intervention (PIXI) program recruiting families of young children with rare neurogenetic conditions to participate in an interview to better understand the experiences of families in receiving their child’s diagnosis and accessing early intervention services. … Read More

The Unexpected Gift: A Father’s Journey as a Caregiver, Advocate, and System Shaker

A Father's Journey - Rob Harris

By Rob Harris “What does it mean to be a dad when your child’s needs change everything?” That’s the question I found myself answering—not just once, but every day—after my daughter Isabelle was born. She’s legally blind due to Optic Nerve Hypoplasia (ONH), and she’s also had epilepsy, complex medical needs, and major challenges accessing a fair education. I wasn’t … Read More

Building a System of Care to Support Families During Emerging Public Health Threats

Families are the driving force for the system of care.

At Parent to Parent USA, we’re always looking for opportunities to contribute to initiatives that support families of children with disabilities or special health care needs. Recently, we had the chance to provide input as part of an American Academy of Pediatrics (AAP) initiative to design a visual representation of an effective system of care. This tool, developed in collaboration … Read More

Support Parent Summit 2024: An Inspiring Convening

Support Parent Summit Thank You

The second annual Support Parent Summit, held on October 9, 2024, was an outstanding success. This virtual event brought together the dedicated Parent to Parent staff and volunteers who provide invaluable peer support to families of children with disabilities or special health care needs across the U.S. Event Highlights Diverse Participation: We welcomed 94 live participants, with an even split … Read More

P2P USA’s Committees and Task Forces

Call for Volunteers

Volunteers are the heart of Parent to Parent! In the spirit of peer-to-peer support, Parent to Parent USA is seeking volunteers to bolster our national efforts. By joining us, you can play a vital role in achieving our strategic goals. Together, we will work to better serve ALL families of individuals with disabilities and special health care needs. We invite … Read More