P2P USA’s Committees and Task Forces

Volunteers are the heart of our Parent to Parent mission! In the spirit of peer to peer support, Parent to Parent USA is seeking volunteers to support our national efforts to ensure our strategic goals of Expansion, Outreach, Innovation and Sustainability to best serve ALL families of individuals with disabilities and special health care needs. If you are interested in serving … Read More

Valerie’s Story

Valerie C and family

Valerie Colavecchio is the mom of a 17 year old boy named Parker who was born with a rare genetic disorder called galactosemia. She is also the statewide Program Manager for Family Support Services at Parent to Parent of NYS, where she takes pride in ensuring that every parent is heard, and understands they are not alone. Valerie recently shared … Read More

How P2P Matches Work

Parents who are raising a child with disabilities or special health care needs often feel overwhelmed and isolated. Parent to Parent organizations connect parents who face similar challenges in raising their children with disabilities or special health care needs. Parents are matched, based on their request, with a trained Support Parent who has walked a similar path. Each year, more … Read More

What’s on Your Special Needs Back-To-School Checklist?

An Example of a Student Profile

A new school year means a new teacher and maybe even a new school. If your child needs accommodations or is in a special education program, it may mean a new IEP team. Add the transition from summer to the school routine, and your to-do list can quickly become overwhelming. Here is a simple parent-tested way to prepare for back-to-school: … Read More

P2P USA’s Marsha Quinn Featured on Handi-Link

Handi-Link Logo

Our Co Executive Director, Marsha Quinn, recently spoke with Cam Wells, host of the syndicated radio program Handi-Link, about the Parent to Parent movement. Listen to the episode below to learn more about who the Parent to Parent network serves, the impact of the pandemic on households with children and youth with special health care needs, and more. Marsha’s interview … Read More

Learn About a New Rescue Medication for Seizures

New Seizure Rescue Medication Webinar

On July 14, Parent to Parent USA hosted a free learning event for people living with episodes of frequent seizures––and for their care partners. If you missed the live event, you can watch the recording here. You will: Learn about episodes of frequent seizures (2 or more seizures in 24 hours that are different from usual seizures) and why you … Read More

Watch: Navigating Social Security

Title slide from Shellie Lott's presentation on Navigating Social Security

Social Security is a complex system to navigate. Several benefits programs provide financial assistance to people living with disabilities. Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) are the two most common federal programs. Being aware of, and applying for, these benefits is an important part of planning for future care for your child. Does getting started feel … Read More

Watch: AMCHP’s Virtual Roundtables on Telehealth

Parent to Parent USA is proud to support AMCHP’s ongoing telehealth work by providing technical assistance to maternal and child health programs. Through a series of roundtables, AMCHP and its partners have highlighted how telehealth can improve health equity and access to care. In particular, for Children and Youth with Special Health Care Needs (CYSHCN) and their families, telehealth can … Read More

What does Mother’s Day look like for your family?

A frame that reads "Tell your story"

Mother’s Day is coming up and we know that it can be a hard day for some of us. To the moms who never, ever give up: we want to celebrate you and showcase your stories. So tell us: what does Mother’s Day look like for your family? What do you wish others knew about you as a mom? Tell … Read More

Lenn’s Story

Lenn Boston and his family

We are honored to introduce board member Lenn Boston of Kalamazoo, MI, a retired U.S. Navy Chief Petty Officer, real estate agent, and father of four, including a daughter with Angelman Syndrome. “We all have something that we’ve experienced in life that could possibly help someone else.” Lenn Boston Hear his uplifting and inspiring story about a blended family whose … Read More