Our Co Executive Director, Marsha Quinn, recently spoke with Cam Wells, host of the syndicated radio program Handi-Link, about the Parent to Parent movement. Listen to the episode below to learn more about who the Parent to Parent network serves, the impact of the pandemic on households with children and youth with special health care needs, and more. Marsha’s interview … Read More
[Sponsored] Learn About a New Rescue Medication for Seizures
On July 14, Parent to Parent USA hosted a free learning event for people living with episodes of frequent seizures––and for their care partners. If you missed the live event, you can watch the recording here. You will: Learn about episodes of frequent seizures (2 or more seizures in 24 hours that are different from usual seizures) and why you … Read More
Watch: Navigating Social Security
Social Security is a complex system to navigate. Several benefits programs provide financial assistance to people living with disabilities. Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) are the two most common federal programs. Being aware of, and applying for, these benefits is an important part of planning for future care for your child. Does getting started feel … Read More
Watch: AMCHP’s Virtual Roundtables on Telehealth
Parent to Parent USA is proud to support AMCHP’s ongoing telehealth work by providing technical assistance to maternal and child health programs. Through a series of roundtables, AMCHP and its partners have highlighted how telehealth can improve health equity and access to care. In particular, for Children and Youth with Special Health Care Needs (CYSHCN) and their families, telehealth can … Read More
What does Mother’s Day look like for your family?
Mother’s Day is coming up and we know that it can be a hard day for some of us. To the moms who never, ever give up: we want to celebrate you and showcase your stories. So tell us: what does Mother’s Day look like for your family? What do you wish others knew about you as a mom? Tell … Read More
Lenn’s Story
We are honored to introduce board member Lenn Boston of Kalamazoo, MI, a retired U.S. Navy Chief Petty Officer, real estate agent, and father of four, including a daughter with Angelman Syndrome. “We all have something that we’ve experienced in life that could possibly help someone else.” Lenn Boston Hear his uplifting and inspiring story about a blended family whose … Read More
“Parent to Parent USA is great for connecting families with each other for emotional support”
We are proud to be in good company in Care.com’s “10 helpful special needs resources and organizations” list. Whether you have a child with special needs or are looking to support a family who does, we’re here for you! “Parent to Parent USA has local groups in almost all states, and is great for connecting families with each other for … Read More
Wanted: Veterans of Adaptation
Parent to Parent USA Co Executive Director Lily Brown is a contributor to the March/April 2022 issue of Parenting Special Needs Magazine. In keeping with the Health & Wellness theme, she reminds parents that they are strong, resilient, and have much sage advice to offer others. “While we don’t know what the future holds, as you continue your journey parenting … Read More
2021 Leadership Institute Recap
Parent to Parent USA held its 2021 Leadership Institute virtually on October 18-20, 2021. The Leadership Institute is the only national conference focused solely on the challenges of running a Parent to Parent program. Parent to Parent leaders from across the country gather to share best and promising practices to address the changing needs of families of those with disabilities … Read More
Fiona’s Story
Fiona Patrick, Parent to Parent of Pennsylvania Director and P2P USA Board Member, recently shared her personal journey. What role has emotional support played in her healing process? And how did she grow a Parent to Parent program which has provided support to thousands of families in the past 25 years? Whether you are new to caring for a child … Read More