Join us for our next virtual, member-only Town Hall where Dr. Alanson Van Fleet and members of our Research Committee will provide updates on their ongoing work. More importantly, this is your opportunity to share what you’re hearing from the families you serve. What are the most pressing issues facing families today? Your insights will inform and guide our research … Read More
Study Opportunity for Families of Young Children with Rare Conditions or Developmental Delays
Parent to Parent USA is sharing a research opportunity from RTI International and The University of North Carolina at Chapel Hill. The Parent and Infant Inter(X)action Intervention (PIXI) program recruiting families of young children with rare neurogenetic conditions to participate in an interview to better understand the experiences of families in receiving their child’s diagnosis and accessing early intervention services. … Read More
Research Survey for Families of Individuals with IDD
Parent to Parent USA is excited to share a research opportunity for families of individuals with intellectual and developmental disabilities (IDD). Your input will help better understand the expectations for individuals with IDD after they finish school. This 10-minute survey, conducted by a researcher from George Mason University, aims to gather valuable insights from family members like you. Why participate?Your … Read More
Now Recruiting Families – Project BENEFIT
Would you like to share your story and improve healthcare? If you are a member of the IDD and BIPOC communities, consider joining our virtual focus groups.